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Running for a Cure National MPS Society Walk/Run to be held October 13 Medical research is the key to 17 and 15 year-old Mark and Casey Lessing's future. To raise funds for medical research, Mark and Casey's parents are organizing a National MPS Society Walk/Run on Saturday, October 13, at the Post Office Cafe. This money will help Mark and Casey as well as hundreds of other children across the United States. Beginning at 10a.m. (9:30 Fun Run), the 16th annual Post Office Café 5k race is one of 20 MPS Walk/ Runs being held throughout the country during the month of October. All proceeds benefit the National MPS Society's medical research fund. Starting with just seven runs back in 1999, the MPS Walk/Runs grew to seventeen in 2006 raising more than $300,000 annually. Mark and Casey of Babylon suffer from this rare, progressive genetic disease called Sanfillipo Syndrome, one of several MPS and related diseases. Mark and Casey represent hundreds of MPS children awaiting treatment for the diseases. MPS affects the body's major organs including the respiratory system, heart, bones, and nervous system. The disease is hereditary and because it is progressive in nature, few children are able to fight their symptoms long enough to reach adulthood. There are no cures yet, but research con- tinues to offer better understanding and the development of new treatments. "Mark and Casey are looking forward to seeing families and friends, serious and not-so-serious runners, young and old, and everyone in between participating this year," said Jen Cantin, event organizer and GM of The Post Office Cafe. "The need for research is immediate. Millions of dollars are needed to find the cures. We need to make this our biggest, most successful run ever." Registration forms are available by contacting The Post Office Cafe at 631-669-9224 or registration can also be completed online at www.mpssociety.org. For more information about 16th Annual Post Office 5k Race or to register, make a contribution, volunteer or donate prizes, please contact Mark Lessing or Jen Cantin at 631-669-9224 or email mark@lessings.com
The National MPS Society exists for find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. To learn more about the Society, please visit the website at www.mpssociety.org or phone 207- 947-1445.
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